Eda Selebatso is the founder of BORDIS, an organisation dedicated to raising awareness, advocating for and supporting individuals and families affected by rare diseases in Botswana. Through her work, she has helped bring attention to a health area that is often overlooked, creating a platform where patients and families can access support, information and a sense of community.

She is a certified Maxwell Leadership Coach, Speaker and Trainer. She is a specialist Project Manager, a philanthropist, and patient advocate. 

Eda’s passion is human development to ensure dignity for all persons. Her career spans over two decades in the health, conservation, education and mining sectors. She has supported organisations achieve their business goals. Eda has led and contributed to several flagship innovations in her country and globally. She has contributed to the achievement of the UN resolution on people living with rare diseases, WHA resolution on rare diseases, Universal health coverage (UHC), and contributed to several publications as well as speaking locally and internationally on rare diseases, public health, UHC, global health policy, equity, equality and human rights.

She is former International MPS Network Chairperson, the founder & chairperson of Botswana Organisation for rare Diseases (BORDIS), ISPEP Board advisor, member of International Gaucher Alliance, member of Rare diseases International and International Rare

Diseases Research Consortium Patient Advocacy Constituent Committee member. She continues to apply her skills as a pioneer in global health and rare diseases in Botswana and globally, to address health inequities and social injustices that rare disease patients and their families face daily.

Her work contributes to the Sustainable Development Goals, particularly SDG 3: Good Health and Well-being, by promoting better understanding of rare diseases, encouraging early recognition and advocating for improved healthcare support for affected individuals. It also supports SDG 10: Reduced Inequalities by giving a voice to people living with rare conditions who often face challenges such as limited awareness, delayed diagnosis and barriers to appropriate care.

Her dedication has created a meaningful impact by helping build awareness, reduce stigma and promote inclusion for the rare disease community in Botswana. Her leadership and commitment make her a deserving change maker.